Includes links to organizations, medical details, and support group resources.
Non-profit organization supports medical research of EB, with a brief description of the disease, the foundation, and fund raising efforts.
Grandmother of two brothers with EB describes the skin condition and its effects. Find links to medical information and EB support resources.
Provides a link for friends and family to support and educate each other about EB.
Mother of a boy with the rare skin disorder, epidermolysis bullosa, describes her son's experiences. Find photos, a message board, and links.
Detailed explanation of EB includes FAQ, a personal history, helpful links, poems, and inspirational quotes.